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Post Posted: Jul 9, 2006 8:45 pm 
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bretagne22,
I'm glad you're brother found that acupuncture worked for him! Unfortunately, for someone that doesn't like the thought of going to a chiropractor, I doubt they'll go for the acupuncture. Of course, it may depend on how bad it gets. :(


bdogsgal,
We considered altitude, but it doesn't seem to make a difference one way or another, at least in this case.

I was reading tonight that some folks have had some success with a hypoglycemic diet, so might try that and see what happens.

The remedy in the end will probably be a little bit of this and a little of that - just like great home cookin' :chef:

Thanks everyone for your posts! 8)


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Post Posted: Jul 9, 2006 11:31 pm 
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Has the Meniere's Disease been confirmed in your friend C2? I had all the symptoms of Meniere's Disease and it ended up being Benign Paroxysmal Positional Vertigo (BPPV). Here's a good link on it. http://www-surgery.ucsd.edu/ent/PatientInfo/info_bppv.html

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Post Posted: Jul 9, 2006 11:53 pm 
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I was diagnosed in 1997 with Meniere's Disease. Moving up here from the subarbs actually helped a great deal. It was'nt so much the altitude, it was the peace and quiet.

There are good days and bad days. I avoid crowds and no longer recreationally shop in overly lit environments.

I am on no special diet, but do watch the salt intake (not a big fan anyway, so it was no struggle).

I work from home as much as I can, and when I can't, my work environment is well suited with few distractions.

I am fortunate in that it is only seldom delibating for me.


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Post Posted: Jul 10, 2006 7:09 pm 
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bdogsgal,

Thanks for the link on Benign Paroxysmal Positional Vertigo. Meniere's Disease has not been confirmed, so I'm looking for any medical condition that might have similar symptoms. The medical doctors have helped rule out the major stuff via a cat scan and blood work. Now, they just give the drug meclazine (not sure if that is spelled correctly) and send them home. Meclazine does seem to help, but has the side of effect of major drowsiness, so it's like trading one problem for another. :( I think it has become discouraging to go to a MD and find no solution to preventing the symptoms.

The symptoms have been described to me as follows:

A slight dizziness is almost always present during everyday functions. Some days the dizziness has been so bad that they've had to stay home from work and have fallen a couple of times. (This makes me think that it is diet related).
Seems to have some hearing loss (probably due to a current musical lifestyle)
Has a sensitivity to sunlight (always has to wear sunglasses). This symptom has been around the longest I would say. I didn't know this could be a symptom of Meniere's until I started researching the topic a couple of days ago.

There may be more symptoms that I'm not aware of. It's hard to know what is going on in someone else physically. :scratchchin:

They have been on a high protein diet in the past for different reasons and said that this is when they felt the best. (This makes me think again that at least part of it is diet related.) Perhaps the diet helped with the salt issue too. From what I've observed, large amounts of caffeine seems to make them feel worse. After reading about and hearing how the high protein diet affected them, I recommended that they go back to that type of eating for awhile to see what effects it has and lay off the caffeine.


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Post Posted: Jul 10, 2006 7:32 pm 
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So glad I read this thread~ I have suffered from these symptons for as long as I have lived in Colorado 11 years now. Sometimes so badly that it knocks me off me feet for days at a time, slight turning of my head and I would be so sick and heavy headed, like an anvil was resting there instead.
I can no longer drink alcohol 2 glasses of wine the next day I cant move at all . I hate going into doctors office so I would only go when it was a really bad time and someone could drive me. Everytime my blood pressure would be very low and I would be slighty dehydrated from lack of appetite from these various symptons. So I was told hey kiddo stop drinking sodas, lay off the caffeine and eat more often , also quit the dreaded wonderful first thing in the morning and right after dinner smokes 8O and drink atleast 8 glasses of water a day.
I did all that but One , and I am feeling much better. Not cured. I will be bringing this up at my next appointment. Thank you


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Post Posted: Jul 10, 2006 7:47 pm 
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Snapper,

Hope the info. in the thread helps. I wish you the best!


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 Post subject: meniere's
Post Posted: Jul 10, 2006 7:57 pm 
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If you read "Heal your headaches - the 1-2-3 program," by David Buccholz, M.D., he states that dizziness can be a sign of migraine. He does take a very different approach to migraine than most -- his premise is that all headaches are from the migraine mechanism and controlling your diet will help considerably. So, according to his theory, constant dizziness and the senstivity to light would suggest migraine.

I've read quite a bit on Meniere's, mainly because of the vertigo and sudden hearing loss I experienced nearly a decade ago. I experienced a vertigo spell last summer after some time without any, and ended up going through some extensive dizziness testing (for Meniere's) and MRIs through the ear, nose and throat doctors at the Franklin Kaiser Permanente offices (I think they are great -- does take forever to actually get in to see them, but once you are there, they are very caring and helpful). I don't have Meniere's, but my MRIs showed that I had a tumor at the base of my skull right up by my inner ear hearing apparatus and jugular vein (officially called a glomus jugulare tumor). Rather than have surgery, I had gamma knife radiation and we are waiting to see if that works. From my reading on the overall topic, there are several things that can cause vertigo - women approaching menopause can experience vertigo and are often prescribed meclazine (sp), acoustic neuroma tumors might also contribute to vertigo and as I said, Dr. Buchholz (he's a neurologist) believes migraine can cause vertigo. The overall opinion on Meniere's is that attacks are believed to stem from changes in fluid volume in the membranous labyrinth, a section of the inner ear. Taking diuretic or limiting salt would then have a positive effect.

I know from my own past experiences that it's hard to find a physician that will take you serious when you have vertigo, but there are some physicians who understand and will work with you to diagnose the problem. If you really have Meniere's, it can be totally disabling. In fact, it is now recognized by the U.S. Social Security Administration as a potentially disabling condition (http://www.menieresinfo.com/disability.html)

Good luck on figuring out what's wrong and the best way to approach a solution/cure. m.


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Post Posted: Jul 10, 2006 10:33 pm 
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cyberlyber has a great overview of menieres. i wish you extreme luck and good care on your tumour. what a bummer, but good thing it was caught now and not later. a friend of mine had "laser" radiation - prolly the same as your gamma knife, and it did a great job. best of luck!

ready for a long menieres input?

i've had menieres for 18 years, unknown but frustrated for the 1st 10 of those. there are many causes, but no known cure. a common cause, such as mine, is a head trauma. i had steady hearing loss in my good ear, which is now legally deaf.

diet is a prime instigator of the dizzies. different strokes for different folks, but my bad things were salt and caffeine. it's about the fluid retention in the inner ear. salt is a retainer and affected me w/in 10 minutes usually. learn to read labels and cook your own food more often so you can control your salt intake. that was the major diet change for me.

caffeine is a diuretic, so while drinking it you feel good. but w/in 1/2 hour give or take, when the source is withdrawn, your body goes into overdrive to make up for the water loss, and menieres victims get it right in the ears.

alcohol supposedly works the same way, but not for me. i heard my best the morning after and felt my best (no clogged head, no ditzies). it's when you overdo it and drink like a fish (non-alchohol) for a hangover cure or just make up for the morning blahs that it hits you. drink in moderation and you may be ok.

light was never a factor, day or night, for me. i was checked for migraines too, but no light problem, no migraines.

stress was a major player in my dizzies, much as i hated to admit it. stress gets everyone in their weakest spots, and mine was the ears. when i was a happy camper (usually), i was fine. one dizzy because of diet slipup, and i worried about it and they kept on coming. especially since i always drove alot - i couldn't afford to lose my license!! - the more they hit the more i got. a nasty circle.

barometric pressure affected me too. i was overly sensitive there. train rides thru tunnels, semi's and their sudden pressure changes in passing, hilly roads, all affected me with or without the weather bp changes, but hi pressure days were nasty nasty.

when i finally went to see a doctor, i got such a runaround i gave up. finally told my trusted gynecologist, she said it sounded like menieres. next ear specialist i saw i mentioned it and he said "but of course!" yeah rite. gave me diruetics and sent me home. didn't help due to side effects. one even set me up on a sudafed diet, even tho over the counter was already illegal by then.

there are several diuretics to have. meclazine was nasty. lasik and one other are the 2 i alternate prescriptions with (both given to overly water-laden prego ladies), but i havn't needed either for several years. when things came to a head and i was concerned over my license (here on the mountain roads!) and my job, i had surgery.

they put a shunt in my ear to facilitate drainage, and if i were silly i'd call myself normal. by comparison, i am. i still get occasional ringing but less dramatic then before. i often get constant noise but not so distracting as before, more like background noise. loud situations trigger those, but i avoid those when possible but that's rare (i'm a student, firefighter, and work near loud computers). they are manageable. i haven't been "struck by lightning" and hit the floor since surgery, and have only had a couple wannabe dizzies in 3 years. this is the good life!!

if you have menieres and want excellent care, go see denver ear associates. dr feehs is my guy, and jennifer torres is my audiologist. both wonderful.

good luck to your friend.


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Post Posted: Jul 11, 2006 12:30 pm 
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c2hardwick wrote:
Cracker,

Everything I've seen so far says no caffeine, low salt and use a diuretic. The whole diuretic thing seems odd to me, but I guess I'll find out more when I dive into it a bit more. There is usually more to the puzzle than I first realize whenever I start researching a topic. :scrambles:

I don't have it, but I believe someone that I love does. So, I'm trying to help them find answers.

Thanks.
A great natural diuretic is Dandelion root... Wish you well...

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 Post subject: mennieres disease
Post Posted: Jul 11, 2006 5:46 pm 
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I have been diagnosed with Meniere's disease. I have had it for 2 years. After several attacks from the disease I can safely say at this time I have not had a spell since October of last year. First of all, I believe in prayer and that is a big part of all of this for me. Secondly, I go to a ear, nose, throat specialist who has had me on a diuretic, wearisomely, which is a blood pressure medicine, and a potassium pill daily. Menieres disease affects your inner ear with fluid that builds up. That fluid has no where to go, thus the ringing in ears, and nasty spells that occur with this, thus the directic helps with this. I changed my eating habits also. Four things of which you need to limit your intake are: Caffeine, Chocolate, Alcohol, and Sodium. You learn to read the labels for sodium and you would be amazed at the contents of sodium in foods. Look at rice sometime and packaged foods. Also packaged lunch meats are bad. So I eat a breakfast of Kashi cereal, banana, and soy milk that all are low in sodium and sugars, and decaf coffee. Lunch, I usually snack on fruits and have some yogurt. Dinner is the meal for protein and low sodium products. Vegetables are good for you and so are yams. I also quit drinking alcohol and on occasion will have a small glass of wine or a beer. AND finally, you need to drink plenty of water with the directic. God has blessed me with no spells for quite some time and I am thankful for this. I hope this will be helpful for you. I was threatened with the surgery and knew I would not go that route.


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Post Posted: Jul 11, 2006 6:41 pm 
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Hi All,

Thanks much for your posts. All of the information is greatly appreciated!! 8)


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